Designed Specifically
for High-Risk Infants

Tracking Health

NIS ™ High-Risk Infant Follow-up

baby in a nicu sleeping
The Neonatal Information System™ (NIS™) High-Risk Infant Follow-Up System (HRF) is a clinical database solution that was developed based on over 25 years of input from physicians, nurses and administrators from different regions of the United States. 

Designed specifically for high-risk infants, the NIS™ HRF supports the tracking of health outcomes and neurodevelopment from infancy through childhood and encompasses the full scope of high-risk infant follow-up assessment and care.

NIS HRF can be customized for your applications

Multiple Use Options

The NIS™ HRF can be used as a standalone system or as an app to the NIS™. For hospitals using the NIS™, the demographic, perinatal, hospital stay and discharge data are automatically linked to the NIS™ HRFsaving time and avoiding double data entry. In addition, new patient data (for patients whose hospital care occurred elsewhere) can also be entered into the NIS™ HRF clinical database.

Hospitals that choose to use the NIS™ HRF as a standalone data management system have the option to interface with the hospital electronic medical record – just as the hospitals that use the in-house portion of the NIS™ has – to upload data to and from the EMR and NIS™ HRF.

Doctor at computer reviewing Medical Data Systems reports
Hospital data and ipad being reviewed by doctor

Powerful query options makes your data more relevant

Data Query Capabilities

Importantly, hospitals using the NIS™ High-Risk Infant Follow-up application are able to query the data both retrospectively as well as prospectively.

As an example:

Of the patients who had BPD and were on a ventilator for more than 10 days and received a FiO2 of greater than 0.75; how many were developmentally delayed at a corrected age of 18 months.


Of the patients who were developmentally delayed at age 18 months; how many had BPD and were on a ventilator of more than 10 days and received a FiO2 of greater than 0.75.

NIS™ High-Risk Infant Follow-up
Sample of Features

NIS ™ High-Risk Infant Follow-up
Data Capture Examples

Are there items here you don’t want to track?  No problem! They won’t appear on your screen.

Are there items that you need that don’t appear below?  No problem! We can add them— or you can!

  • Patient ID/Medical Record Number
  • ISIS Number
  • HRIF Visit Number
  • Patient Name
  • Visit Date – Including Day of the week, Month, Day and Year
  • HRIF ID Number
  • Zip Code of Primary Care Giver
  • Caregivers contact information
  • Caregivers e-mail address
  • Visit Status – on time or late
  • Who is present at exam with patient
  • Patient seen by
  • Location of exam
  • Interpreter Used?
  • Chronologic Age (automatically calculated in months and days)
  • Corrected Age (automatically calculated in months and days)
  • Routine Child Care
  • Living Arrangements
  • County of Primary Care
  • Insurance: Carrier, Policy Numbers and Comments
  • Care Giver’s Concerns since Last Visit with Comment Section
  • Medical Equipment Used at Home Since Last Visit
  • Medications since Last Visit with Comments
  • Hospitalizations since Last Visit Including Reason for Hospitalization and Comment Section
  • Procedures since Last Visit with Comments
  • Growth Parameters: Height, Weight and Head Circumference, Classification
  • Nutrition and Diet
  • Nutrition Type
  • Nutritionist’s comments
  • Feeding Modes
  • Feeding Behavior
  • Vitamins
  • Sleep Habits
  • Elimination Habits
  • Physical Exam at Time of Visit
  • Neurosensory Assessment
  • Does this child have a visual impairment?
  • History of ROP
  • Eye surgery
  • Impairment
  • Reason if Visual Impairment is Unknown
  • Location of impairments
  • Corrective Lens Recommended
  • Corrective lens used
  • Medical Services Review
  • Does this child have a PMD (private medical doctor)?
  • Is this child referred for medical services?
  • Medical Services Referrals: Services, Dates, Reasons for Referral, Status and Comments
  • Hearing Assessment History
  • Does this child have a hearing loss, if unknown – why?
  • Neurological Assessment
  • Was a neurological exam performed?
  • Reason if neurological exam was not performed
  • Involuntary movements present?
  • Summary of neurological assessment
  • Oral Motor Function Age Appropriate Responses for the Following
  • Feeding and Action Taken
  • Swallowing and Action Taken
  • Management of Secretions and Action Taken
  • Functional Assessment
  • Bimanual function
  • Right Pincer grasp
  • Left Pincer grasp
  • Muscle Tone
  • Neck
  • Trunk
  • Right upper limb
  • Right lower limb
  • Left upper limb
  • Left lower limb
  • Active Tone
  • Vertical Suspension
  • Pull to Sit/Head Lag
  • Prone Suspended
  • Prone Position
  • Deep Tendon and
  • Cutaneous Reflexes
  • Right upper limb
  • Right lower limb
  • Left upper limb
  • Left lower limb
  • Bimetal
  • Patellar
  • Clonus Left
  • Clonus Right
  • Primitive reflexes
  • Postural reflexes
  • Motor Developmental Milestones
  • Vocalized
  • Eye contact
  • Localize a Rattle – if not, action taken
  • Track an Object
  • Head control
  • Motor Activity
  • Facial movement
  • Tongue fasciculation
  • Drooling
  • Passive Muscle Tone
  • Hip Abductors
  • Dorsiflexion
  • Scarf sign
  • Passive Muscle Trunk
  • Popliteal Angle
  • Hand movements
  • Rigidity
  • Craniofacial
  • Anterior fontanel
  • Sutures
  • Skull
  • Palate
  • Neurosensory Eye
  • Movements
  • Cerebral Palsy
  • Does the child have cerebral palsy?
  • Gross motor function child 18-24 months
  • Gross motor function child >24-36 months
  • Developmental Assessment
  • Was a developmental assessment screen or test performed during this visit?
  • Date developmental assessment performed
  • Reason if developmental test was not performed.
  • Bayley Infant Screener
  • Bayley III Hard Copy
  • Cognitive Composite
  • Language composite
  • Gross Motor Scaled Score
  • Adaptive behavior composite
  • Receptive Language
  • Fine motor scaled score
  • Social emotional composite
  • Bayley III Screener
  • Cognitive
  • Expressive language
  • Receptive language
  • Fine motor
  • Gross motor
  • Motor composite
  • Bayley III Comments
  • Battelle Developmental
  • Inventory Screening Test, 2nd Edition
  • Adaptive domain
  • Personal Social Domain
  • Motor domain
  • Cognitive domain
  • Communication
  • The Capute Scales
  • Language Auditory (CLAMS)
  • Cognitive Adaptive (CAT)
  • Full Scale Capute
  • Other Screens
  • Cognitive
  • Language Composite
  • Fine Motor
  • Personal Social
  • Receptive Language
  • Gross Motor
  • Motor Composite
  • Adaptive
  • OT/PT Comments
  • PLS Scores
  • Auditory comprehension scale
  • Auditory comprehension scaled score
  • Expressive communication scaled score
  • Total language scaled score age equivalent
  • PLS scores total language scaled score
  • SLP Comments
  • First Steps (KEIS)
  • Synagis Candidate
  • Chief Complaint
  • EMP Score
  • EMP score
  • EMP Score Pass/Fail
  • Autism Screening
  • Was an autism spectrum screen performed during this visit?
  • Autism screening tool
  • Autism screening results
  • Referred for further autism assessment?
  • Services
  • Receiving Early
  • Intervention Services
  • Services through the regional centers prevention program?
  • Referred for Special Services
  • Infant Development Services and Provider
  • Feeding Therapy and Feeding Therapy Provider
  • Hearing Services and Hearing services provider
  • Behavioral Intervention
  • Behavioral Intervention Services
  • Nutritional Therapy and Nutritional Therapy Provider
  • First Steps (KEIS)
  • Vision Series and Vision Services Provider
  • Occupational Therapy and occupational therapy provider
  • Physical Therapy and Physical Therapy Provider
  • Visiting Public Health and Visiting Public Health Provider
  • Speech Language communications Therapy and Provider
  • Social Work Intervention and Provider
  • Resources and Social Concerns
  • Care Giver Child disruptions
  • Economic and Environmental Concerns
  • Community Relationship Concerns
  • Parent Child Concerns
  • Comment Sections
  • Standard Comments Library
  • Staff Concerns
  • Staff Recommendations
  • Gestational Age
  • Birthweight
  • Apgars: 1, 5, 10
  • Discharged on Oxygen?
  • Home on Monitor?
  • Active Diagnoses at the Time of Discharge.
  • Cumulative Diagnoses
  • Discharge Medications
  • Discharge Plan

Get Started With NIS

Simply put - the Neonatal Information System™ is the most comprehensive clinical information management system available today; incorporating information from all aspects of clinical care for critically ill newborns in the NICU.

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Complete the form to see how NIS can improve data management for your hospital's NICU and High-Risk Infant Follow-Up Clinic!

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